The quality of medical intervention is often more
a matter of the quality of caring than the quality of curing,
and never more so than when life nears its end. Yet medicine’s
focus is disproportionately on curing,or at least on the ability
to keep patients alive with life-support systems and other medical
interventions. This ability to intervene at the end of life has
raised a host of medical and ethical issues for patients, physicians,
and policy makers.
The Dartmouth Atlas demonstrates that, to the
extent that end of life issues are addressed in practice, they
are resolved in ways that depend on where the patient happens
to live, not on the patient’s preferences or the power of care
to extend life. The Michigan experience of death varied remarkably
from one community to another in 1995-96:
- The chance that the decedent
was an inpatient in an acute care hospital at the time of death
varied by a factor of two, from less than 20% to more than 40%.
- The chance of being admitted to an intensive
care unit at least once during the last six months of life varied
by a factor of about three, from less than 15% to more than
45%.
The intensity of care in the last six months of
life also varied remarkably in 1995-96:
- The average number of visits
to physicians varied by a factor of more than two, from 16 to
34.
- The number of physicians involved in patients’
care varied substantially. In some hospital referral regions
almost one-third of patients saw ten or more physicians during
the last six months of their lives; in other regions fewer than
9% were treated by that many different physicians.
Like other medical decisions, end of life decisions
about the use of resources are influenced by the available supply
of acute care hospital resources and by individual physicians’
practice styles. But is more better? The intensity of care in
the last six months of life is an indicator of the propensity
to use life saving technology. The question of whether more medical
intervention is better must be framed in terms of the potential
gain in life expectancy for populations living in regions with
greater intensity of intervention. Research conducted in conjunction
with the Atlas project provides evidence that populations living
in regions with lower intensity of care in the last six months
of life did not have higher mortality rates.
More than 80% of Americans say that they wish
to avoid hospitalization and intensive care during the terminal
phase of illness, but those wishes are often overridden by other
factors. If more intense intervention does not improve life expectancy,
and if most patients prefer less care when more intensive care
is likely to be futile, the fundamental question is whether the
quality of care in regions with fewer resources and more conservative
practice styles is better than in regions where more aggressive
treatment is the norm.
To
read chapter
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in the Last Six Months of Life in Adobe Acrobat PDF format,
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NOTICE
TO ATLAS READERS
While not giving answers, the atlas raises questions about
health care service use that merit careful consideration. "High"
rates of use are not necessarily bad and "low" volumes
good (or vice versa). Our goal is to move toward rates that are
consistent with high quality health care, which need to be determined
with local clinical, community and patient discussion and dialogue.
The atlas is not a physician or hospital report card. When reviewing
data, note that the Hospital Service Areas in the atlas were defined
by the atlas author. They may differ significantly from what a
hospital considers its market area.

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